Improving Care for Children with Complex Medical Needs

This is the resources list for the briefing titled, "Improving Care for Children with Complex Medical Needs" held on Friday, October 5, 2018.

All materials can be found in full at the links provided.

 

Key Resources (listed chronologically, beginning with the most recent)

“CARE Award: 2018 Preliminary Results – A National Three-Year Project to Transform Care Delivery and Payment for Children with Medical Complexity.” Children’s Health Association. September 4, 2018. Available at http://allh.us/WVBr.

“Families of Children with Medical Complexity: A View from the Front Lines.” Allshouse, C., Comeau, M., Rodgers, R., Wells, N. American Academy of Pediatrics. November 1, 2017. Available at http://allh.us/QXxf.

Additional Resources (listed chronologically, beginning with the most recent)

“How Medicaid Protects Children with Special Health Care Needs.” Bonacini, C., Mahan, FamiliesUSA. June 2018. Available at http://allh.us/ke7y.

“Delaware’s Plan for Managing the Health Care Needs of Children with Medical Complexity.” Delaware Health and Social Services Division of Medicaid and Medical Assistance. May 15, 2018. Available at http://allh.us/u3hp.

“Medicaid’s Unnecessary Barriers Delay Care for Children with Complex Needs.” Manetto, N., Greenberg, J., Gaulin, M. Stat News. May 1, 2018. Available at http://allh.us/V4Qp.

“Care Coordination for Children With Medical Complexity: Whose Care Is It, Anyway?” Kuo, D., McAllister, J., Rossignol, L., Turchi, R., Stille, C. Pediatrics. March 2018. Available at http://allh.us/RXGf.

“Medicaid’s Role for Children with Special Health Care Needs: A Look at Eligibility, Services, and Spending.” Musumeci, M., Foutz, J. Kaiser Family Foundation. February 22, 2018. Available at http://allh.us/xHJf.

“How Do Medicaid/CHIP Children with Special Health Care Needs Differ from Those with Private Insurance?” Musumeci, M., Foutz, J. Kaiser Family Foundation. February 22, 2018. Available at http://allh.us/dMWR.

“The Medicaid Cap: “Carving Out” Medically Complex Kids Won’t Protect Them.” Schneider, A. Georgetown University Health Policy Institute Center for Children and Families. June 21, 2017. Available at http://allh.us/V7g9.

“Coordinating Medicaid Long-Term Services and Supports for Children with Medical Complexity.” Anthem. May 2017. Available at http://allh.us/8GEd.

“The Case for the Use of Nurse Practitioners in the Care of Children with Medical Complexity.” Samuels, C., Harris, T., Gonzales, T., Mosquera, R. A. Children. February 21, 2017. Available at http://allh.us/eMgC.

“Home Care for Children with Multiple Complex Chronic Conditions at the End of Life: The Choice of Hospice Versus Home Health.” Lindley, L., Mixer, S., & Mack, J. Home Health Care Services Quarterly. July 6, 2016. Available at http://allh.us/H9Kx.

“Care Coordination for Children with Complex Special Health Care Needs: The Value of the Advanced Practice Nurse’s Enhanced Scope of Knowledge and Practice.” Looman, W. S., Presler, E., Erickson, M. M., Garwick, A. E., Cady, R. G., Kelly, A. M., Finkelstein, S. M. Journal of Pediatric Health Care: Official Publication of National Association of Pediatric Nurse Associates & Practitioners. July/August 2013. Available at http://allh.us/eMgC.

“Defining Quality Outcomes for Complex-Care Patients Transitioning across the Continuum Using a Structured Panel Pro Access.” Jeffs, L., Law, M., Straus, S., Cardoso, R., Lyons, R., Bell, C. BMJ Quality & Safety. August 30, 2012. Available at http://allh.us/upUw.

“State Health Care Financing Strategies for Children with Intellectual and Developmental Disabilities. Intellectual and Developmental Disabilities.” Bachman S., Comeau, M., Tobias, C., Allen, D., Epstein, S., Jantz, K., Honberg L. Intellectual and Developmental Disabilities. June 2012. Available at http://allh.us/UfTW.