Linda Goler Blount, MPH
Black Women’s Health Imperative, President and CEO
Nelly Ganesan, MPH
Matthew Might, Ph.D.
University of Alabama-Birmingham, Hugh Kaul Precision Medicine Institute, Professor, Department of Medicine Director
Stephen Kingsmore, M.D., DSc
Rady’s Children’s Institute, President and CEO
Experts and Analysts
Aaron Goldenberg, Ph.D., MPH
Center for Genetic Research Ethics and Law at Case Western Reserve University School of Medicine, Associate Director
Brendan C. Lanpher, M.D.
Mayo Clinic, Clinical Geneticist
Holly K. Tabor, Ph.D.
Stanford University Department of Medicine, Associate Professor of Epidemiology and Population Health
Christopher P. Austin, M.D.
National Institutes of Health’s National Center for Advancing Health Translational Sciences, Former Director; Flagship Engineering, CEO-Partner
Dan Kastner, M.D., Ph.D.
National Human Genome Research Institute, Scientific Director
Anne R. Pariser, M.D.
National Center for Advancing Translational Sciences, Office of Rare Diseases Research Director
Matt Eyles, M.S.
America’s Health Insurance Plans (AHIP), President and CEO
E. Gay Grossman
Neurogene, Inc., Director of Patient Engagement; ADCY5.org, Co-Founder
MEPAN Foundation, CEO; Illumina Rare and Undiagnosed Genetic Diseases, Patient Ambassador
Julia Jenkins, MA
EveryLife Foundation for Rare Diseases, Executive Director
Rachel Sher, J.D., MPH
National Organization for Rare Disorders, Vice President, Regulatory and Government Affairs
Marshall Summar, M.D.
Children’s National Rare Disease Institute, Director
Grace Whiting, J.D.
National Alliance for Caregiving, President and Chief Executive Officer
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