Day 2: Navigating the Current System

Summit: Voice of the Patient

Keynote 2: Virtual Clinical Trials – Care from Anywhere

This keynote examined the notion of meeting patient needs and expectations in novel settings using virtual clinical trials – ones that leverage digital health technologies such as online platforms, mobile apps, and remote monitoring devices to deliver trial elements to patients – as a case study. Our speaker discussed the opportunities and challenges of deploying decentralized trials, and how this innovative approach may impact patient input and equitable access to the clinical research process.

Speaker: Craig Lipset, MPH, Advisor and Founder, Clinical Innovation Partners

Panel 2: Empowering Patients to Navigate and Negotiate Health Care

This panel explored successful mechanisms to support patients navigate the current, highly complex health care system and foster independence in decision making. Panelists explored topics in care navigation, digital tools for patients, and shared decision making between patients and providers to personalize care, as well as how the patient voice is leveraged in developing these approaches.


  • Stephanie Anderson, DNP, RN, Executive Director, Respecting Choices
  • Jen Horonjeff, Ph.D., Founder and CEO, Savvy Cooperative
  • Maria Lemus, Executive Director, Visión y Compromiso
  • Eleanor Perfetto, Ph.D., MS, Interim Chief Executive Officer, National Health Council (moderator)

For the full Summit: Voice of the Patient event listing, click here.