Better Health through Data: Opportunities and Limitations of Health Data

Key Resources

(listed chronologically, beginning with the most recent)

“A Vision for Equitable Data Recommendations from the Equitable Data Working Group.” The White House. April 22, 2022. Available here.

 “Improving Data on Race and Ethnicity: A Roadmap to Measure and Advance Health Equity.” Grantmakers in Health. December 2021. Available here.

“Advancing Health Equity Requires More and Better Data.” Artiga, S. Kaiser Family Foundation. October 27, 2021. Available here.

“New Resources Enable Investigators to Expand Research into Dual-Eligible Individuals.” Mirr, A. Arnold Ventures. September 23, 2021. Available here.

“Data to Inform Research On Integrated Care For Dual Eligibles.” Hartman, L., Lukanen, E. State Health Access Data Assistance Center (SHADAC). April 21, 2021. Available here.

“Eliminating Bias in Health Data Science.” Danka-Mullan, I. IBM Watson Health Perspectives. June 24, 2020. Available here.

Additional Resources

“Patients Want Privacy, Accountability for How Their Health Data Is Used.” Henry, T. American Medical Association. August 15, 2022. Available here.

“Collection of Race and Ethnicity Data for Use by Health Plans to Advance Health Equity.” Haley, J., Dubay, L., Garret, B., et al. Urban Institute. July 22, 2022. Available here.

 “Quality Data Plays Key Role in Defining and Addressing Health Inequities.” Dwyer, M. The Pew Charitable Trusts. July 8, 2022. Available here.

“Improving Race and Ethnicity Data Collection: A First Step to Furthering Health Equity Through the State-Based Marketplaces.” Palanker, D., Clark, J., Monahan, C. The Commonwealth Fund. June 9, 2022.

“The Ethical and Transparent Use of Data to Reduce Health Disparities.” Blue Cross Blue Shield Association. April 27, 2022. Available here.

“Collecting Sexual Orientation and Gender Identity Information.” The Centers for Disease Control and Prevention. March 9, 2022. Available here.

“Public Health Is Missing Crucial Data on LGBTQIA+ People. It’s Not Hard to Collect” Cahill, S. Stat. January 14, 2022. Available here.

“Racial Equity Will Not Be Achieved Without Investing in Data Disaggregation.” Kauh, T. Health Affairs. November 29, 2021. Available here.

“We Need More Data on Health in Rural America.” Lutz, A., Chughtai, S. National Association of County Health Officials (NACCHO). November 17, 2021. Available here.

“Achieving Progress Toward Health Equity Using Race and Ethnicity Data: State Strategies and Lessons Learned.” National Governors Association (NGA), Duke Margolis Center for Health Policy, National Academy for State Health Policy (NASHP). November 8, 2021. Available here.

“Modernizing Race and Ethnicity Data in Our Federal Health Programs.” James, C., Lyons, B., Saynisch, P., et. al. The Commonwealth Fund. October 26, 2021. Available here.

“Health Equity and Social Determinants of Health in HEDIS: Data for Measurement.” The National Committee for Quality Assurance. June 2021. Available here.

“Advocating for Data Disaggregation by Race and Ethnicity.” Asian and Pacific Islander American Health Forum. May 2021. Available here.

“Using Data to Reduce Health Disparities and Improve Health Equity.” American Hospital Association. March 2, 2021. Available here.

“In Order to Defeat COVID-19, the Federal Government Must Modernize Its Public Health Data.” White, J., Badge, D. The Heritage Foundation. September 3, 2020. Available here.

“Ready, Set, Go! A Guide for Collecting Data on Sexual Orientation and Gender Identity.” National LGBTQIA+ Health Education Center. June 26, 2020. Available here.

“Using Data to Improve Local Public Health Practice.” Sumner, K. National Association of County and City Health Officials (NACCHO). April 2, 2019. Available here.

“Race, Ethnicity, and Language Data: Standardization for Health Care Quality Improvement.” Agency for Healthcare Research and Quality. October 2018. Available here.

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