Health Data Privacy in the AI Era: Navigating Federal and State Protections and Emerging Risks

Jodi Daniel is a partner at Wilson Sonsini where she provides strategic, legal, and policy advice to healthcare providers and health plans that are bringing innovation into practice, and to health technology clients navigating the dynamic health regulatory environment. Jodi is a leader in digital health and health data policy. She was the founding director of the Office of Policy in the Office of the National Coordinator for Health IT (ONC) at HHS, where she led the agency’s federal advisory committees and established national health IT policy on privacy, security, consumer e-health, telehealth, and safety and oversight. Jodi developed ONC’s regulatory capacity, led the adoption of health IT standards and certification regulations, and advised CMS on health IT incentive programs. Prior to her ONC role, Jodi was a key drafter of the original HIPAA Privacy and Enforcement Rules and served as HHS’s first senior counsel for health IT. Jodi received a BA in Economics from Tufts University, an MPH from Johns Hopkins School of Public Health, and a JD from Georgetown University Law Center. She is currently Assistant Professor Adjunct at Yale Medical School and serves on the National Academy of Medicine AI Code of Conduct Steering Committee.

Former health tech reporter at Fierce Healthcare and Inside Health Policy

Kev Coleman is recognized as one of the leading experts in healthcare AI policy. His work has been featured by Politico and Fierce Healthcare and has shaped industry discussions on the safety and regulation of healthcare AI. He speaks frequently on this topic, having participated at events such as The Asian Leadership Summit in Seoul, South Korea, as well as Politico’s 2025 Health Care Summit, where he presented his work during a panel discussion alongside Rep. Ami Bera (D-CA). His notable papers on AI include Generalization Uncertainty in AI-Enabled Medical Devices, Healthcare AI Regulation: Guidelines for Maintaining Public Safety and Innovation, and Lowering Health Care Costs Through AI. Mr. Coleman‘s career spans work as a successful technology startup executive to healthcare research, and the results of the latter have been cited in top newspapers and media across the country and referenced in congressional health reform discussions (both Democratic and Republican).

Dr. Grace Cordovano, BCPA, founder of Enlightening Results and co-Founder of Unblock Health, is dedicated to providing personalized patient advocacy services, specializing in the oncology space. With over 25 years of advocacy experience, she strategically guides patients through survivorship or end-of-life care planning with empathy, ensuring they are armed with the most pertinent, medically credible, easy to understand information to make informed decisions about their care. Through her advocacy work, she is humbled to witness the challenges, barriers to access, unmet needs, grief, financial toxicities, joys, and losses patients face in the midst of a diagnosis. Dr. Cordovano is an advocate for leveraging digital technologies to enhance treatment of the whole person in the context of life-altering diagnoses as well as for digital health to give patients a competitive advantage over their diagnosis.

A recognized authority on Patient Administrative Burden (PAB), Dr. Cordovano’s co-founded Unblock Health, the master key to unlocking all access to patient health information while enabling patients to exercise their right of access. Her policy work is far-reaching, contributing to the U.S. Core Data for Interoperability Taskforce, HITAC Interoperability Standards Work Group, HIMSS Public Policy Committee, the Sequoia Project’s Consumer Voices Workgroup, and the National Academy of Medicine’s AI Code of Conduct Project. Her advisory role at CancerX reflects her passion for equitable, affordable cancer care for all patients.

Dr. Cordovano completed her Master’s and Ph.D. in Biochemistry at Albert Einstein College of Medicine (Bronx, NY). She is a board-certified patient advocate via the international credentialing of the Patient Advocate Certification Board. She served as one of 5 national e-patient ambassadors for the Coalition of Compassionate Care of California, a PCORI research project funded by the Eugene Washington PCORI Engagement Award. Dr. Cordovano has been repeatedly recognized as Patient Advocate of the Year. She has been featured in StatNews, Medscape, KevinMD, Tincture, The Health Care Blog, U.S. News & World Report, Kaiser Health News, etc.

Deven McGraw is Chief Regulatory and Privacy Officer for Ciitizen, a platform for patients to gather and manage their health information, divested from Invitae in 2023. From 2015-2017, she directed U.S. health privacy and security as Deputy Director, Health Information Privacy at the HHS Office for Civil Rights and Chief Privacy Officer (Acting) of the Office of the National Coordinator for Health IT. Previously she led the Health Privacy Project at the Center for Democracy & Technology for six years, testifying before Congress on health privacy issues on multiple occasions. She also is currently serving on the following: Health IT Advisory Committee (appointed by GAO); Data and Surveillance Workgroup of the CDC’s Advisory Committee to the Director on CDC’s Data Modernization; the California Data Sharing Framework Policies & Procedures Subcommittee; the Board of Directors of Manifest MedEx; and the National Academy of Medicine Artificial Intelligence Code of Conduct Steering Committee.

Randi Seigel is a Partner with Manatt Health based in New York. She leads Manatt Health's Healthcare Regulatory and Transactional business unit and co-leads the firm's health tech practice. Randi plays a leading role in Manatt's work at the intersection of health care and artificial intelligence, advising health systems, payers, investors, digital health companies, and other health care organizations on the legal, regulatory, compliance, and transactional issues associated with AI-enabled care delivery and innovation. She also co-leads Manatt's Health AI Policy Tracker alongside Jared Augenstein, providing legal oversight of the firm's monitoring and analysis of federal and state AI legislation, emerging case law, and regulatory guidance. . She brings nearly 20 years of experience counseling providers, payers, investors, post-acute care organizations, and health technology companies on complex regulatory and operational issues that shape the adoption and commercialization of innovative health care solutions.