Summit: Voice of the Patient

Key Resources

“Transforming Health Care Measurement By Partnering With Patients and Caregivers.” Durrah, H., Frazier, K., Hoy, S., et al. Health Affairs Blog. July 6, 2020. Available at http://allh.us/gDfC.

“Effect of FAmily CEntered (FACE®) Advance Care Planning on Longitudinal Congruence in End-of-Life Treatment Preferences: A Randomized Clinical Trial.” Lyon, M.E., Squires, L., Scott, R.K. et al. AIDS and Behavior. May 12, 2020. Available at http://allh.us/K7h4.

“Principles to Make Health Care Measurement Patient-Centered.” American Institutes for Research. May 2020. Available at http://allh.us/GuBU.

“Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Fact Sheet.” Health Resources & Services Administration. August 2019. Available at http://allh.us/qfWt.

“The Consumer Benefits of Patient Shared Decision Making.” Staren, D., Krishnan, S., Quincy, L. Altarum Healthcare Value Hub. May 2019. Available at http://allh.us/vdpH.

“Paving the Path for Family-Centered Design: A National Report on Family Caregiver Roles in Medical Product Development.” McCleary, K. The National Alliance for Caregiving. May 2019. Available at http://allh.us/BEvX.

“Making Informed Consent an Informed Choice.” Brach, C. Health Affairs Blog. April 4, 2019. Available at http://allh.us/Cy9v.

“The Importance of Effective Communication in Healthcare Practice.” Ratna, H. Harvard Public Health Review. 2019. Available at http://allh.us/89pG.

“What Is Patient Voice and Why Does It Matter?” Desouza, D. Jayex. October 8, 2018. Available at http://allh.us/FPDJ.

“Navigation Delivery Models and Roles of Navigators in Primary Care: A Scoping Literature Review.” Carter, N., Valaitis, R., Lam, A., et al.  BMC Health Services Research. February 8, 2018. Available at http://allh.us/xyRp.

“5 Ways Healthcare Organizations Can Amplify the Voice of the Patient.” Jain, S. Forbes. August 22, 2017. Available at http://allh.us/jkaf.

“Empowering Patients as Partners in Health Care.” Edgman-Levitan, S., Tejal, G. Health Affairs Blog. July 24, 2014. Available at http://allh.us/kgVx.

Additional Resources

“PATH Tuesday Table Talk – Patient Centered Measurement.” Durrah, H., Frazier, K. Youtube video, 33:08. Posted by “Hala Durrah PATH – Tuesday Table Talk,” October 6, 2020. Available at http://allh.us/7ygD.

“Health Literacy Universal Precautions Toolkit, 2nd Edition – Get Patient Feedback: Tool #17.” Agency for Healthcare Research and Quality. September 2020. Available at http://allh.us/MUfj.

“Getting to Patient-Centered Care in a Post–COVID-19 Digital World: A Proposal for Novel Surveys, Methodology, and Patient Experience Maturity Assessment.” Boissy, A. NEJM Catalyst Innovations in Care Delivery. July 14, 2020. Available at http://allh.us/yuVd.

“California SARS-CoV-2- Pandemic Crisis Care Guidelines.” California Department of Public Health. June 2020. Available at http://allh.us/DmXd.

“Amplify: A Consumer Voices Bureau.” The National Center for Complex Health & Social Needs. 2020. Available at http://allh.us/A83c.

“Student Hotspotting: Program Overview.” The National Center for Complex Health & Social Needs. 2020. Available at http://allh.us/NmK3.

“Towards Meaningful Engagement for the Patient Voice.” Pitts, P. The Patient: Patient-Centered Outcomes Research. June 5, 2019. Available at: http://allh.us/EF6X.

“Paving the Path for Family-Centered Design: A National Report on Family Caregiver Roles in Medical Product Development.” McCleary, K. National Alliance for Caregiving. May 2019. Available at http://allh.us/BEvX.

“End-of-Life Care: Expanding Patient Choice of Ethical Options.” Moffit, R. The Heritage Foundation. January 31, 2019. Available at http://allh.us/PRkv.

“Patient Portals: Improving the Health of Older Adults by Increasing Use and Access.” Chen, J., Malani, P., Kullgren, J. Health Affairs Blog. September 6, 2018. Available at http://allh.us/hYX9.

“Giving Consumers the Tools and Support They Need to Navigate Our Complex Healthcare System.” Slater, C. The Health Care Blog. July 27, 2018. Available at http://allh.us/mDMn.

“What Does It Mean to Be an Empowered Patient?” Ennis-O’Connor, M. Patient Empowerment Network. May 22, 2018. Available at http://allh.us/CdM8.

“Integrating Patient Voices into Health Information For Self-Care and Patient-Clinician Partnerships: Veterans Affairs Design Recommendations For Patient-Generated Data Applications.” Woods, S., Evans, N., Frisbee, K. Journal of the American Medical Information Association. May 1, 2016. Available at http://allh.us/jUdC.

“Improving Health and Health Care.” Antos, J., Capretta, J., Chen, L., et al. American Enterprise Institutes. December 9, 2015. Available at http://allh.us/NK6Q.

“Empowering Patients as Key Decision Makers in the Face of Rising Health Care Costs.” McKeown, K. The Heritage Foundation. December 27, 2011. Available at http://allh.us/3TKN.