Day 2: Navigating the Current System

Keynote 2: Virtual Clinical Trials – Care from Anywhere

Craig Lipset, MPH, is the founder of Clinical Innovation Partners, providing advisory and board leadership with pharma, tech and venture capital to bring vision and driving action at the intersection of research, digital solutions, and patient engagement. Craig was the Head of Clinical Innovation and Venture Partner at Pfizer, on the founding Operations Committee for TransCelerate Biopharma, and on the founding management teams for two successful startup ventures. Craig is Adjunct Assistant Professor in Health Informatics at Rutgers University, and Adjunct Instructor in the Center for Health + Technology at University of Rochester. He serves on the Board of Directors for the Foundation for Sarcoidosis Research and the MedStar Health Research Institute, as well as on the Editorial Board for Therapeutic Innovation & Regulatory Science. Craig has been listed among the PharmaVOICE most inspiring people in the life sciences (Red Jacket hall-of-fame), Pharmaceutical Executive’s Emerging Leaders, CenterWatch Top 20 Innovators in Clinical Trials, and the AlleyWatch Who’s Who in eHealth.

Contact: craig@lipset.com


Panel 2: Empowering Patients to Navigate and Negotiate Health Care

Stephanie Anderson, DNP, RN, is the executive director of Respecting Choices, a division of C-TAC Innovations. She provides overall  leadership for the delivery of Respecting Choices programs. Respecting Choices has a long history of working with both organizations and communities to adopt best practices that ensure individuals’ preferences and decisions for healthcare are both known and honored. She has over 25 years of experience in palliative care and hospice, home care, case management, and emergency medicine. She earned her Doctor of Nursing practice degree from the University of Iowa specializing in health systems administration. Stephanie has served in a variety of leadership roles. In these roles, her palliative care program was awarded Joint Commission Certification and the system received the Circle of Life award from the American Hospital Association. She led the initiation of and co chaired the Iowa Physician Orders for Scope of Treatment (IPOST) movement, resulting in new legislation and statewide implementation. Stephanie joined Respecting Choices in 2013 as a senior faculty consultant and evolved into the director of consultation and education services prior to her current role. Stephanie is vice president of the board for Advance Care Planning – international. She currently co-chairs the National POLST program assistance committee and is a member of the executive committee. Stephanie believes person-centered decision making based on an individual’s goals and values truly transforms care and should be the top priority to delivering exceptional whole-person healthcare.

Contact: sanderson@respectingchoices.org

Jen Horonjeff, Ph.D., is a patient advocate and the founder and CEO of Savvy Cooperative. Savvy is the first and only patient-owned public benefit co-op that helps companies build successful and inclusive health innovations, which it does by connecting companies directly with diverse patients in order to gather insights and input through surveys, focus groups, interviews, user-testing and other co-design opportunities. Jen was named one of the 50 Most Daring Entrepreneurs of 2018 by Entrepreneur Magazine, alongside the likes of Elon Musk, Chance the Rapper, and Reese Witherspoon. Jen is deeply committed to human-centered design in healthcare, and has firsthand knowledge as both a patient and professional. She grew up with juvenile idiopathic arthritis and survived a brain tumor as an adult. She is also a patient-centered outcomes researcher, a human factors engineer, and an FDA Consumer Representative. Jen earned her Master’s in Ergonomics and Biomechanics and PhD in Environmental Medicine, both from New York University. Utilizing her unique perspective, Jen continues to give patients a platform to have their voices and expertise be heard, included, and equitably valued–because the future of healthcare is co-designed with patients.

Contact: jen@savvy.coop

Maria Lemus is the founding Executive Director of Vision Y Compromiso, which provides leadership, capacity building and advocacy for over 4,000 Promotores and Community Health Workers. Maria has served on numerous public health advisory committees including: the Health and Human Services Promotores Advisory Committee; the Latino Best Baby Initiative; the National Teen Pregnancy Initiative; the NIH and CDC Hispanic/Latino Workgroup of the National Diabetes Educational Program; the California Latino Mental Health Concilio for the Reducing Health Disparity Project; the Family Violence Prevention Fund Intimate Partner Violence Education Project; and the California Hispanic American Cancer Society Hispanic Advisory Committee, among others. Maria previously consulted for local community organizations and served as a fellow with the Purpose Prize and the Mexican American Solidarity Foundation. She has 21 years of management experience at the California Department of Health Services, the City and County of San Francisco, and the California Department of Corrections, where she served as President of the California Chicano Correctional Workers Association. Maria holds a B.A from the University of California, Riverside and is an alumna of the National Hispana Leadership Institute and of the California Women’s Policy Institute. For her leadership in public health, she has received a California State Assembly commendation, as well as recognition from California Latinas for Reproductive Justice, the California Center for Public Health, the Contra Costa Women’s Hall of Fame, and the Tiburcio Vasquez Community Clinic.

Contact: maria@visionycompromiso.org

Eleanor Perfetto, Ph.D., MS, currently serves as interim chief executive officer of National Health Council (NHC) and was named senior vice president of strategic initiatives for NHC in July of 2015 and was promoted to Executive Vice President in January 2019. She also holds a part-time faculty appointment at the University of Maryland, Baltimore School of Pharmacy where she is Professor of Pharmaceutical Health Service Research. Her research and policy work primarily focus on patient engagement in comparative effectiveness and patient centered-outcomes research, medical product development; patient-reported outcome selection and development; and health care quality. Dr. Perfetto holds BS and MS degrees in pharmacy from the University of Rhode Island, and a PhD from the University of North Carolina School of Public Health with concentrations in health policy and epidemiology.

Contact: eperfetto@nhcouncil.org